MAGNET: Medicines self-management dementia

Enhancing medicines organisation with people with dementia and family carers

Research Details

This project aims to develop and test a way to improve medicines organisation for people with early dementia living at home and their family carers.

Many people with dementia live with other health conditions requiring them to take multiple medications. The confusion associated with dementia may make it difficult for people to organise medicines. Problems include taking incorrect doses of medicines, difficulties accessing medicines and lack of communication with professionals.

What will taking part in the project involve?

For people with dementia:

  • We will interview you about how you manage your medicines. This will take about forty minutes at a time convenient for you.
  • You may be asked if you wish to be recorded via video. This is optional. The video would be used for training purposes.

If you wish to do so, you may also…

  • write about your experiences of medicines management in a diary provided to you, as and when you can do so. Full instructions on the diary on how to complete the diary will be included. You can ask someone to help you with this.
  • speak to a researcher on the phone about your medicine management experiences. The researcher will take notes to record this.
  • take photos of what you feel best captures your medicines management experience.

For family carers of participating person with dementia:

  • We will interview you about how you organise your family members/friend’s medicines. This will take about forty minutes at a time and place convenient for you.
  • You may be asked if you wish to be recorded via video. This is optional. The video would be used for training purposes.

If you wish to do so, you may also…

  • write about your experiences of your family members/friends medicines are organised in a diary provided to you as and when you are able to do so. Full instructions on the diary on how to complete the diary will be included. You can ask someone to help you with this.
  • speak to a researcher on the phone to give additional information about your family members/friends medicine organisation experiences
  • take photos of what you feel best captures your family members/friends medicines organisation experience.

For health and social care professionals:

  • We would collect information about how you are involved in medicines management for people with dementia living in the community in an interview lasting approximately 30-40 minutes.

All participants receive £15 for taking part.

Research Area

Mental Health & Dementia

Status of the Research:

This research study is looking for volunteers to take part.

Lead Research organisation

Bradford District Care NHS Foundation Trust

Description of volunteers required

We are looking for people with dementia, family carers of the person with dementia who takes part in the study, and health and social care professionals.

People with dementia will be:

  • Using two or more medicines
  • Living at home
  • Living alone or living with family
  • Living with mild-moderate dementia

Family carers will be:

  • Relatives, friends or neighbours identified as involved in supporting the person with their medicines
  • Caring for the person with mild-moderate dementia
  • May be living within or outside the household of the person with dementia

Health and social care professionals will be:

  • Community health and social care professionals who are supporting a person with dementia and family carers with medicines in the home environment.

Exclusion:
People with dementia will not be able to take part if they

  • Using fewer than two medicines
  • Living in care homes
  • Live with advanced dementia
  • Lack capacity to consent
  • On the End-of-Life Pathway
  • Unable to communicate verbally

Family carers will be excluded if they are either of the following:

  • Not a relative, friend or neighbour identified as involved in care for the person
  • The person they are caring for has advanced dementia, using fewer than two medicines, and/or not living at home

Health and social care professionals will be excluded if they are any of the following:

  • Not based within the community
  • Have no involvement with patients with mild-moderate dementia living at home
  • Have no involvement with patients with mild-moderate dementia, on two or more medicines

 

What should I do if I want to take part?

If you would like to participate in this study, please contact: elizabeth.travis@bthft.nhs.uk / 07903522449.

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Research Overview

What is the purpose of this clinical research study?

Our goal is to agree a core outcome set for research trials into acute confusion – delirium.